Overview
The Double-Edged Helix explores the impact of recent genetic discoveries on both different population segments and society as a whole. The authors address the medical and ethical implications of the new technologies, outlining potential positive and negative effects of genetic research on minorities, individuals with disabilities, and those of diverse sexual orientations. Presenting a wide array of perspectives, this book emphasizes the need to ensure that research into genetics research does not result in discrimination against people on the basis of their DNA.
Editorials
From The Critics
Reviewer: Patricia Power, MS(British Columbia Children's Hospital)Description: This aptly named book is the collective effort of an impressive and lengthy list of contributors.
Purpose: The book reminds us of the broader implications of genetics in medicine. Although the use of technology in the understanding of human development, disease, and therapy has been brilliant, the authors revisit the bioethical and social science of genetic research. They define and redefine society, community, and the individual with strength and empathy. They approach and remark on areas of long-standing political debate and recognize the inherent complexities. This book contains an awe-inspiring amount of information and by and large fulfills its lofty aims.
Audience: The readership is limitless; the book has something for everyone and can be enjoyed by all. Given the book's objectives, the stunning and scholarly list of contributors from varied disciplines is not surprising.
Features: The book is very dense but exceptionally well written and presented. The authors address the major social and ethical themes relating to genetics in medicine. The descriptive and illustrative ideas used to convey broader dilemmas are excellent. The immensely helpful introduction is followed by chapters that are equally as strong and stand on their own. The overall quality and appearance of the book is fantastic. The uniqueness of this book lies in the comprehensive yet concise presentation of ideas and debates in a field where few books dare to go.
Assessment: This is a wonderful collaborative accomplishment. It is a success.
From The Critics
Contributors from the biological and social sciences and ethics explore some aspects of genetic research that are not discussed in the industry's glossy brochures. Among them are genetic complexity in human disease and behavior, advocacy groups, African American perspectives on genetic testing, the origins of homosexuality, and current developments in genetic discrimination. Annotation c. Book News, Inc., Portland, ORNew England Journal of Medicine
A cautious look at the effects of genetic discoveries on society... The issues raised by this book are valid, and all scientists should be aware of them. I often found myself nodding in agreement.
— Jeffrey C. Long
Journal of the American Medical Association
Bringing the concerns of different communities together in a single volume makes it possible to appreciate the mosaic of human issues more fully and forces us to anticipate the challenges that may arise -- and that will require our attention -- as the genetic revolution proceeds... A much needed antidote to the current genetic hoopla.
— Doris Teichler Zallen
Contemporary Sociology
The authors present several thought-provoking issues in regard to prenatal genetic screening and selective abortion. It's a great contribution to the field.
— Fernando I. Rivera
Choice
This book superbly and successfully fills its purpose -- to show the need for dialogue between researchers, health care professionals, communities, and individuals regarding various aspects of genetic technology.
3 Stars from Doody