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Overview
"The volume deserves our serious attention. The authors have provided us an invaluable primer about the HGP and its implications for the future of American health care." —Jurimetrics
"This book does make a real contribution... in explaining why the genetics revolution holds so much promise and why it is so difficult to bring that promise to fruition." —The Journal of Legal Medicine
"... marked by a forward-looking, analytically and empirically grounded thematic coherence. The editors’ carefully crafted template and contributions successfully focus and organize the material." —Annals of Internal Medicine
"Excellent" —Canadian Medical Association Journal
"The editors have done a very good job integrating the contents into a very useful and readable information source." —Choice
"... this highly focused book is a well-written, thoughtful, and insightful consideration of the HGP and is valuable reading for anyone concerned with the future of our country's medical infrastructure." —Science Books & Films (**Highly recommended)
"A distinguished group of scientists, lawyers, and scholars have written a coherent, readable account of the legal, medical, ethical, and policy issues many (if not all) of us will be wrestling with on both a personal and a public level, as a result of current genetic research." —Library Journal
"Each of the contributors is a distinguished authority on the topic. Ethicists, especially, will find well-developed presentation of issues, with exposition of the differing ethical assumptions in tension in the society debate." —Doody’s Health Sciences Book Review Home Page
How will the science of gene mapping and gene manipulation affect health care? Leading scholars explore the clinical, ethical, legal, and policy implications of the Human Genome Project for the forms of health care, who delivers it, who receives it, and who pays for it.
The book contains black-and-white illustrations.
Synopsis
"The volume deserves our serious attention. The authors have provided us an invaluable primer about the HGP and its implications for the future of American health care." — Jurimetrics
"This book does make a real contribution... in explaining why the genetics revolution holds so much promise and why it is so difficult to bring that promise to fruition." — The Journal of Legal Medicine
"... marked by a forward-looking, analytically and empirically grounded thematic coherence. The editors' carefully crafted template and contributions successfully focus and organize the material." — Annals of Internal Medicine
"Excellent" — Canadian Medical Association Journal
"The editors have done a very good job integrating the contents into a very useful and readable information source." — Choice
"... this highly focused book is a well-written, thoughtful, and insightful consideration of the HGP and is valuable reading for anyone concerned with the future of our country's medical infrastructure." — Science Books & Films (**Highly recommended)
"A distinguished group of scientists, lawyers, and scholars have written a coherent, readable account of the legal, medical, ethical, and policy issues many (if not all) of us will be wrestling with on both a personal and a public level, as a result of current genetic research." — Library Journal
"Each of the contributors is a distinguished authority on the topic. Ethicists, especially, will find well-developed presentation of issues, with exposition of the differing ethical assumptions in tension in the society debate." — Doody's Health Sciences Book Review Home Page
How will the science of gene mapping and gene manipulation affect health care? Leading scholars explore the clinical, ethical, legal, and policy implications of the Human Genome Project for the forms of health care, who delivers it, who receives it, and who pays for it.
Charles R. MacKay
This collection of essays is a useful addition to commentary sparked by the Human Genome Project and its ethical, legal, and social implications apostolate. The essays cover topics in insurance, employment, entitlement programs, distributive justice, the physician-patient relationship, reproductive choices, clinician education, and policies relevant to preserving the accepted aims of medicine as genetic knowledge creates the potential to transform it. Each of the contributors is a distinguished authority on the topic. The contributions offer informed perspectives on how further churning from the rapid expansion of genetic information may add disruption to a dynamic and unstable healthcare system. Ethicists, especially, will find well-developed presentation of issues, with exposition of the differing ethical assumptions in tension in the societal debate. Practitioners may be less satisfied because of the pronounced academic tilt to the chapters. The book carefully blocks out the sectors of healthcare most likely to feel aftershocks from the chain reaction the Human Genome Project will trigger. It is marked by a forward-looking, analytically and empirically grounded, thematic coherence. The editors' carefully crafted template and their own contributions successfully bring focus and organization to the sometimes very disparate sectors. Several chapters reflect on the convergence of cost-containment strategies and possible healthcare reform with availability and access to genetic information and testing. This is a very ambitious book. Some chapters are less focused and analytic, and consequently, of less usefulness in sketching out complex issues and options. Some omissions (thetransfer from research and discovery to clinical validation and application; the quality of infrastructure laboratory, informational, and support services) also limit the book's overall usefulness to the health professional. The book does not provide information on scientific and political developments and underpinnings of the Human Genome Project and offers sparse comment on clinical applications.
Editorials
From The Critics
Reviewer: Charles R. MacKay, PhD(National Institutes of Health)Description: This collection of essays is a useful addition to commentary sparked by the Human Genome Project and its ethical, legal, and social implications apostolate. The essays cover topics in insurance, employment, entitlement programs, distributive justice, the physician-patient relationship, reproductive choices, clinician education, and policies relevant to preserving the accepted aims of medicine as genetic knowledge creates the potential to transform it. Each of the contributors is a distinguished authority on the topic.
Purpose: The contributions offer informed perspectives on how further churning from the rapid expansion of genetic information may add disruption to a dynamic and unstable healthcare system.
Audience: Ethicists, especially, will find well-developed presentation of issues, with exposition of the differing ethical assumptions in tension in the societal debate. Practitioners may be less satisfied because of the pronounced academic tilt to the chapters.
Features: The book carefully blocks out the sectors of healthcare most likely to feel aftershocks from the chain reaction the Human Genome Project will trigger. It is marked by a forward-looking, analytically and empirically grounded, thematic coherence. The editors' carefully crafted template and their own contributions successfully bring focus and organization to the sometimes very disparate sectors. Several chapters reflect on the convergence of cost-containment strategies and possible healthcare reform with availability and access to genetic information and testing.
Assessment: This is a very ambitious book. Some chapters are less focused and analytic, and consequently, of less usefulness in sketching out complex issues and options. Some omissions (the transfer from research and discovery to clinical validation and application; the quality of infrastructure laboratory, informational, and support services) also limit the book's overall usefulness to the health professional. The book does not provide information on scientific and political developments and underpinnings of the Human Genome Project and offers sparse comment on clinical applications.
Charles R. MacKay
This collection of essays is a useful addition to commentary sparked by the Human Genome Project and its ethical, legal, and social implications apostolate. The essays cover topics in insurance, employment, entitlement programs, distributive justice, the physician-patient relationship, reproductive choices, clinician education, and policies relevant to preserving the accepted aims of medicine as genetic knowledge creates the potential to transform it. Each of the contributors is a distinguished authority on the topic. The contributions offer informed perspectives on how further churning from the rapid expansion of genetic information may add disruption to a dynamic and unstable healthcare system. Ethicists, especially, will find well-developed presentation of issues, with exposition of the differing ethical assumptions in tension in the societal debate. Practitioners may be less satisfied because of the pronounced academic tilt to the chapters. The book carefully blocks out the sectors of healthcare most likely to feel aftershocks from the chain reaction the Human Genome Project will trigger. It is marked by a forward-looking, analytically and empirically grounded, thematic coherence. The editors' carefully crafted template and their own contributions successfully bring focus and organization to the sometimes very disparate sectors. Several chapters reflect on the convergence of cost-containment strategies and possible healthcare reform with availability and access to genetic information and testing. This is a very ambitious book. Some chapters are less focused and analytic, and consequently, of less usefulness in sketching out complex issues and options. Some omissions (thetransfer from research and discovery to clinical validation and application; the quality of infrastructure laboratory, informational, and support services) also limit the book's overall usefulness to the health professional. The book does not provide information on scientific and political developments and underpinnings of the Human Genome Project and offers sparse comment on clinical applications.Booknews
Contributors from medicine, law, and philosophy query how the growing ability to trace certain diseases and conditions to specific genes might impact the allocation of health care resources, the relationship between patients and physicians, health services for minorities, reproductive health, access to insurance and employment, and other matters. Annotation c. by Book News, Inc., Portland, Or.3 Stars from Doody