Cerebral Palsy: A Complete Guide for Caregiving

When a child has a health problem, parents want answers. But when a child has cerebral palsy, the answers don't come quickly. A diagnosis of this complex group of chronic conditions affecting movement and coordination is difficult to make and is typically delayed until the child is eighteen months old. Although the condition may be mild or severe, even general predictions about long-term prognosis seldom come before the child's second birthday.

Written by a team of experts associated with the Cerebral Palsy Program at the Alfred I. duPont Hospital for Children, this authoritative resource provides parents and families with vital information that can help them cope with uncertainty. Thoroughly updated and revised to incorporate the latest medical advances, the second edition is a comprehensive guide to cerebral palsy.

The book is organized into three parts. In the first, the authors describe specific patterns of involvement (hemiplegia, diplegia, quadriplegia), explain the medical and psychosocial implications of these conditions, and tell parents how to be effective advocates for their child.

In the second part, the authors provide a wealth of practical advice about caregiving from nutrition to mobility. Part three features an extensive alphabetically arranged encyclopedia that defines and describes medical terms and diagnoses, medical and surgical procedures, and orthopedic and other assistive devices. Also included are lists of resources and recommended reading.

The Johns Hopkins University Press

"...a concise yet thorough reference to the plethora of information available on caring for the child or adult afflicted with cerebral palsy."

When a child has a health problem, parents want answers. But when a child has cerebral palsy, the answers don't come quickly. A diagnosis of this complex group of chronic conditions affecting movement and coordination is difficult to make and is typically delayed until the child is eighteen months old. Although the condition may be mild or severe, even general predictions about long-term prognosis seldom come before the child's second birthday.

Written by a team of experts associated with the Cerebral Palsy Program at the Alfred I. duPont Hospital for Children, this authoritative resource provides parents and families with vital information that can help them cope with uncertainty. Thoroughly updated and revised to incorporate the latest medical advances, the second edition is a comprehensive guide to cerebral palsy.

The book is organized into three parts. In the first, the authors describe specific patterns of involvement (hemiplegia, diplegia, quadriplegia), explain the medical and psychosocial implications of these conditions, and tell parents how to be effective advocates for their child.

In the second part, the authors provide a wealth of practical advice about caregiving from nutrition to mobility. Part three features an extensive alphabetically arranged encyclopedia that defines and describes medical terms and diagnoses, medical and surgical procedures, and orthopedic and other assistive devices. Also included are lists of resources and recommended reading.

Praise for the first edition of Cerebral Palsy:

"Addresses the many complexities and uncertainties related to this diagnosis. At the same time, it provides the information parents,grandparents, caregivers, and health professionals need — everything from medical, educational, and psychosocial implications to wheelchair maintenance and dental care." — Exceptional Parent

Exceptional Parent

Provides the information parents, grandparents, caregivers, and health professionals need -- everything from medical, educational, and psychosocial implications to wheelchair maintenance and dental care.

Freeman Miller, M.D., is an orthopedic surgeon and assistant professor of orthopedic surgery at Jefferson Medical College in Philadelphia. Steven J. Bachrach, M.D., is a pediatrician and clinical professor of pediatrics at Jefferson Medical College. They are co-directors of the Cerebral Palsy Program at the Nemours/Alfred I. duPont Hospital for Children in Wilmington, Delaware.