Cystic fibrosis afflicts approximately 30,000 Americans. The average age of survival has been steadily increasing, but not quickly enough: a child born with cystic fibrosis today can only expect to live 35 to 40 years.
In this valuable new addition to the Your Personal Health series, Dr. Wayne Kepron offers a comprehensive look at the disease that afflicts so many young people. Topics include:
Symptoms of cystic fibrosis
Making a diagnosis
Complications of the disease
Treatments (including lung transplants)
Techniques and precautions in lung care
Transition into adulthood
Prospects for gene therapy
End-of-life issues
Using diagrams, charts and case studies, Cystic Fibrosis is designed for patients, their families, and caregivers. It is both a quick reference guide and a tool for in-depth study.
Synopsis
A comprehensive guide to cystic fibrosis including symptoms, diagnosis, complication arising from the disease, treatments (including lung transplants), transition to adulthood, current research (including gene therapy) and end-of-life issues.
About the Author, Wayne Kepron
Wayne Kepron, MD, FRCPC, is a Professor of Medicine at the University of Manitoba. He has been a respiralogist at Manitoba's Health Sciences Centre Respiratory Hospital for 25 years.
Comprehensive information on this devastating genetic disorder.
Spokane Spokesman-Review
- Carla K. Johnson
A colleague whose daughter has cystic fibrosis borrowed it and found the book helpful. "I wish something like this had been available when my daughter was diagnosed eight years ago... I think it's a great resource for anyone who's interested in the disease."
E-Streams
- Pamela Ortega
The book is very easy to understand and provides an excellent overview of coping with this disorder.
