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Medical Ethics, Health Law - Medical Law & Legislation, Diagnosis, Pediatrics
Prenatal Testing and Disability Rights by Erik Parens,  Adrienne Asch β€” book cover

Prenatal Testing and Disability Rights

by Erik Parens, Adrienne Asch
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Overview

As prenatal tests proliferate, the medical and broader communities perceive that such testing is a logical extension of good prenatal care -- it helps parents have healthy babies. But prenatal tests have been criticized by the disability rights community, which contends that advances in science should be directed at improving their lives, not preventing them. Used primarily to decide to abort a fetus that would have been born with mental or physical impairments, prenatal tests arguably reinforce discrimination against and misconceptions about people with disabilities.

In these essays, people on both sides of the issue engage in an honest and occasionally painful debate about prenatal testing and selective abortion. The contributors include both people who live with and people who theorize about disabilities, scholars from the social sciences and humanities, medical geneticists, genetic counselors, physicians, and lawyers. Although the essayists don't arrive at a consensus over the disability community's objections to prenatal testing and its consequences, they do offer recommendations for ameliorating some of the problems associated with the practice.

The book contains black-and-white illustrations.

About the Author, Erik Parens, Adrienne Asch

Erik Parens is the associate for philosophical studies at The Hastings Center, Garrison, New York.

Adrienne Asch is the Henry L. Luce Professor of Biology, Ethics and Human Reproduction at Wellesley College, Wellesley, Massachusetts.

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Editorials

Booknews

"Against a background of burgeoning genetic discovery, rising consciousness of discrimination against people with disabilities, and the societal debate about abortion, The Hastings Center undertook a two-year project to explore the disability rights critique of prenatal testing for genetic disability" (from the introduction). Project members, mostly academics in fields such as biology, ethics, genetic research, philosophy, and law, met as a group on multiple occasions to research and discuss this and related issues. Their contributions here illustrate a variety of perspectives about parenthood, disability, and professional practice. Annotation c. Book News, Inc., Portland, OR (booknews.com)

Book Details

Published
September 1, 2000
Publisher
Washington, D.C. : Georgetown University Press, c2000.
Pages
392
Format
Hardcover
ISBN
9780878408030

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